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Our Mission:

Hope.

We are a Patient-Driven Organization, Dedicated to Improving the life expectancy and quality of life for ALK-Positive Patients Worldwide.

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What is ALK-positive Lung Cancer?

ALK-positive cancer is a type of cancer with no known cause, and no known cure (once it has spread to other parts of the body). 

It is caused by a mutation of the ALK gene. It is not thought to be a disease that is inherited, or can be passed on to others in any way. It is thought to occur in about 100,000 people, worldwide, every year. 

 
 

Patient? Caregiver?

Find Hope in the ALK+ Support Group

ALK Positive is a family of patients/survivors & caregivers, just like you, who are facing ALK-positive lung cancer with hope.
Why join?

• Be part of the largest, most active ALK-positive group with 2000+ members.

• Our group focuses on sharing research and info that will help you be informed in your treatment journey.

• Access to our FREE Second Opinion medical program.

• Access to the world’s top ALK doctors.

• Learn about cutting-edge research and trials. . . . and more!


VIDEO: ALK POSITIVE: STRONGER TOGETHER

This powerful micro-documentary is a seven minute film, featuring four ALK Positive patients and their families, plus two of the top ALK researchers in the country, Dr. Christine Lovly and Dr. Vincent Lam. The video beautifully intertwines hope, education, and the immediate need for more research. Credit to fellow ALK patient, Karla Castro-Frenzel and the creative minds at TinMen Productions for making this compelling video happen! More Research = More Life.


 

ALK Positive’s founders Merita & Tom Carroll

the Support Group founded by a patient & led by patients

We invite all patients, caregivers, and invested ALK stakeholders to join our support group.

We understand what you are going through, and hope to share what we’ve learned in our journey so far.



Medical Professionals

ALK Positive partners with researchers and others furthering ALK positive treatment, as well as medical professionals in the vital role of first contact for patients.

Our members work in tandem with our medical professionals by fundraising for groundbreaking ALK-positive research projects -some now headed to clinical trials. Members fundraise for their future- more than $1 million in 2019.

 

Researchers

As a patient-led group, we raise funds & sponsor groundbreaking ALK-positive research projects.

This year, our third year of creating grants, we raised more than $1 million for ALK-specific research. Our partners, LUNGevity and the GO2 Foundation for Lung Cancer, help to make these large-scale research projects possible.

Resources for Doctors

If you have ALK-positive patients, please download our new patient brochure.

The brochure is written by ALK patients, for patients. It can help educate on the basics of this cancer, treatments, and where they can receive ongoing support.

 

our alliances

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