WE ARE A PATIENT-DRIVEN GROUP, PROVIDING INFORMATION, SUPPORT, EMPATHY & RESEARCH FUNDING TO CHANGE THE FUTURE OF ALK-POSITIVE LUNG CANCER.
ALK Positive consists of 1,800+ ALK-positive lung cancer patients and their caregivers in 42+ countries. Through our foundational online support group, we are able to support each other worldwide and share information to become empowered patients-advocates.
We believe in taking control of your own heath and future. We directly support high-impact research that improves patient outcomes and has the potential to transform ALK-positive lung cancer into a chronic (and maybe someday, cured) condition.
We seek to partner with entities who are furthering ALK-positive lung cancer research and treatment options. Please contact us if you are a potential partner.
Founded by a patient, lead by patients and caregivers
We are patient-strong
Meet our Founder
Founder, passed 2018
ALK Positive was created by Merita Carroll in 2015. She wanted a support community where ALK-positive lung cancer patients, like herself, and caregivers could share their personal experience with this condition.
Merita was a vibrant healthy young woman working as a registered nurse when diagnosed Stage IV. She was diagnosed on March 6, 2015 and, sadly, passed away on April 24, 2018.
Read her full story here
ALK Positive Outreach Management Group (OMG), founded in April 2017, is the advocacy arm of the ALK Positive Support Group. ALK Positive OMG is a fiscally sponsored organization by the LUNGevity Foundation as per IRS code for 501(c)(3) non-profits. All funds raised are through the LUNGevity Foundation, but used specifically for ALK Positive projects in accordance with IRS code.
I am a Stage IV cancer fighter. Wife, mother, daughter, nurse, exercise enthusiast, and lover of life!
Vice President, PATIENT
I’m a stage IV lung cancer survivor; diagnosed September, 2012. I live in Michigan with my wife and 3 children where I continue to work full time as an attorney.
I’m 51 years old with a loving wife and family of 5 kids (2 in their 20’s). I was diagnosed stage 4 NSCLC in July 2017. Feeling fortunate to be ALK positive and remain positive for a cure.
I am a caregiver to my husband, Carl, who was diagnosed in 2017 at 33. I am also a mother, student, and small business owner. I hold a BA in Communication & Media Studies and an MSc in Political Science.
Pharmaceutical Advocacy Committee Chair, patient
I am a husband, father, retired dentist, diagnosed ALK Positive Stage IV lung cancer in 2016. I want to help all ALK Positive patients be able to live long happy lives!
Membership, Alliance & Media Committee Chair, caregiver
I’m the primary caregiver to my husband Jeff who was diagnosed Stage IV in December 2015. Advocating for lung cancer is a way to show my gratitude.
Political Advocacy COMMITTEE Chair, caregiver
I am an ALK Caregiver and a lead Clinical Research Coordinator in Lung Cancer. I want to use my education and experience to cure this disease.
Fundraising Committee Chair, Caregiver
I am honored to support the organization that has helped my sister, Cori, so much. She was diagnosed at 32. I love nature, tea, art, and my giant French Bulldog, Ludo.