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Managing Lorlatinib Together: What Patients and Experts Want You to Know
“Patients can—and should—have a voice in their care. This guide is about giving them the tools to do just that.” — Nancee Pronsati, ALK Positive Inc.
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Instructions and Call for Patient Participation in The University of Michigan Judith Tam ALK Lung Cancer Research Initiative
Help Advance Personalized ALK+ Research with the University of Michigan The Judith Tam ALK Lung Cancer Research Initiative at the University of Michigan is leading a groundbreaking effort to better understand and treat ALK-positive non-small cell lung cancer (NSCLC). By collecting patient samples—blood, tumor tissue, and malignant fluid—over time, researchers are building a deep, individualized…
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Introducing Oncogene Cancer Research
An interview with Co-founder & Chair, Yvonne Diaz (also a Board Member of ALK Positive Inc) This month, we speak with Yvonne Diaz, a Board Member of ALK Positive Inc and the co-founder of Oncogene Cancer Research, a UK-based patient organization dedicated to empowering patients, championing advocacy, and accelerating clinical research.
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Clinical Trial Spotlight: Tumor-Infiltrating Lymphocyte Therapy for ALK-Positive NSCLC at Moffitt Cancer Center
For ALK-positive patients who have progressed after targeted therapy, a new clinical trial at Moffitt Cancer Center offers renewed hope. This Phase 1 study explores an enhanced form of Tumor-Infiltrating Lymphocyte (TIL) therapy—empowering a patient’s own immune cells with a genetic boost to better recognize and fight cancer. With its focus on ALK, EGFR, ROS1,…
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Stronger Every Day: How Movement and Community Keep Me Going
When Michele walked into PVolve, she was looking for a way to reconnect with her body after a life-changing cancer diagnosis. What she found was so much more—a community that believed in her, showed up for her, and helped her raise nearly $5,000 for ALK-positive lung cancer research. This is her story of movement, resilience,…
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Trivia for a Cure: How Nikki Turned a Night of Fun into a Force for Research
Nikki never imagined hosting a fundraiser in her name—let alone speaking publicly about her diagnosis. But when her community rallied around her, Trivia Night for a Cause became more than an event. It became a moment of courage, connection, and clarity. Learn how Nikki raised over $6,000 for ALK research and helped start an annual…
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$8 to the Greats: Because Great Things Start Small
Suzanne believes in the power of small gifts and strong communities. That’s why she launched 8 to the Greats—a way for anyone to give $8 a month to fund lifesaving ALK research. Because we’re truly stronger together.
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A Journey of Purpose: How One Traveler Turned Airfare into Hope
After two decades in the travel industry, Keng was diagnosed with ALK-positive lung cancer—and everything changed. Blending his professional expertise with a new sense of purpose, he created HealthcareFares.com, a platform that lets travelers save on flights and fund cancer research at no extra cost.
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Clinical Trials for ALK-positive Cancers – Are They for Me?
Should I enroll in a clinical trial for ALK-positive cancer? The decision to enroll in a clinical trial requires a real understanding of what is being studied and how you […]