Join in the Hope
1100+ Strong in 40+ Countries
World-Wide online support group
"When I was first diagnosed, I felt so alone and overwhelmed. I didn't know anyone with my type of cancer. I didn't even know you could get lung cancer at 32! Joining this group made a huge difference in my life and in my happiness. I finally started taking control of my cancer treatment and my life when I found the ALK Positive family.
-Cori, celebrating her 34 birthday on a hike
If you are an ALK-positive lung cancer patient/survivor, or a caregiver, we invite you to come connect with your ALK family in our online support group.
The three tenets we live by are Information, Support, and Empathy. We are all on this journey together, no matter where you live.
- Be part of a supportive group of more than 1,000 others like you with decades of cumulative ALK experience for you to share in.
- Receive invitations to events, retreats, and meet ups.
- You'll learn about cutting-edge research first and help to advance life-saving ALK research.
Please follow the link below to the registration form and submit your registration. The form ends with a link to the Facebook page you will join. (It's also below.)
WHAT IS ALK+ LUNG CANCER
“ALK-positive” refers to a mutation of the anaplastic lymphoma kinase (ALK) gene, resulting in uncontrolled cell replication, causing cancer.
The ALK gene tells your body how to make proteins that help cells talk to each other. They are particularly prevalent in the lungs. If you have lung cancer with an ALK rearrangement, part of this gene is broken (or mutated.) You may hear your doctor call it ALK-positive.
ALK is also notable because it disproportionally affects certain population groups.
Those more likely to have the ALK fusion gene are:
About 50% of ALK-positive patients are diagnosed before the age of 45.
Females make up 65% of those diagnosed.
Never smoker is someone who has never smoked, or smoked less than 100 cigarettes their life. There is no proven or suspected association of ALK+ with any environmental toxins, such as second-hand smoke, asbestos, or air pollution.
4% of Lung Cancer Cases
ALK-positive lung cancer is found in about 4% of all Non-Small Cell lung cancers cases and is responsible for approximately 72,000 new cases each year worldwide.
We recommend www.uptodate.com/ for full ALK-positive information
Medical Resources Links
- ALK Positive Helpful Links PDF Guide
- Regular Brain MRI Rationale (Early Detection of brain mets)
- Crizotinib (Xalkori) Medication Help (created by our members)
- Alectinib (Alecensa) Medication Help (created by our members)
- National Comprehensive Cancer Network – NSCLC Patient Guide (external link)
- Xalkori Prescribing Information (external link)
- Zykadia Prescribing Information (external link)
- Alecensa Prescribing Information (external link)
- Alunbrig Prescribing Information (external link)
- Information on various Laxatives